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Table 1 Demographic characteristics of youth participants in publicly available data sets

From: Using the big data approach to clarify the structure of restricted and repetitive behaviors across the most commonly used autism spectrum disorder measures

 

Study

AGRE

NDAR

SSC

IAN

HBN

SRS-2

N = 2282

N = 3365

N = 2867

N = 8132

N = 115

Mean age (SD), years

8.34 (3.54)

9.48 (3.55)

9.03 (3.56)

9.75 (3.85)

10.31 (2.99)

Female %

31.4

17.8

13.6

18.1

19.6

SCQ

N = 1012

N = 1185

N = 13,541

N = 102

Mean age (SD), years

5.94 (4.04)

8.82 (3.62)

8.05 (4.05)

10.31 (2.99)

Female %

 

14.3

18.4

19.6

ADI-R

N = 3733

N = 2398

N = 2854

Mean age (SD), years

8.73 (4.86)

8.89 (5.46)

9.02 (3.57)

Female %

22.5

21.2

13.6

ADOS Module 3

N = 1159

N = 2330

N = 1629

Mean age (SD), years

9.52 (3.0)

10.34 (3.19)

9.75 (3.15)

Female %

17.9

24.3

11.3

ADOS Module 4

N = 264

N = 849

N = 83

Mean age (SD), years

18.89 (7.52)

23.69 (9.24)

16.26 (1.40)

Female %

28.4

17.6

10.8

  1. ADI-R, Autism Diagnostic Interview Revised; ADOS, Autism Diagnostic Observation Schedule; AGRE, Autism Genetic Research Exchange; NDAR, National Database for Autism Research; SCQ, Social Communication Questionnaire; SRS, Social Responsiveness Scale standardization dataset; SSC, Simons Simplex Collection; IAN, Interactive Autism Research Database; HBN, Healthy Brain Network